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Parents for Justice was founded
in December 1999 by four mothers, (Fionnuala O
'Reilly, Charlotte Yeates, Breda Butler and the
late Margaret McKeever), who discovered that their
deceased children's organs had been retained and
disposed of, following post-mortem in a leading
Dublin Hospital, without their knowledge or consent.
Frustrated at their inability to obtain answers
to reasonable questions about post-mortem practice,
policy and procedure within Irish hospitals, these
mothers decided to speak publicly about their
experiences.
Within a three-week period
in December 1999,the group had received in excess
of 2000 phonecalls from parents and other next-of-kin
who expressed similar concern about post-mortem
practices within the state. The four founding
members
empathised with callers in the grief that they
expressed. A sympathetic and reassuring voice
at the end of a phone was always available.
By January 2000,a dedicated help-line was established
with three of the committee members dealing with
day-time calls and all four members took numerous
calls each evening. Guidance was offered to those
who were in the process of enquiring about whether
or not the organs of next-of-kin had been retained
or disposed of.
From the beginning, the committee
and members of Parents for Justice were dismayed
by the post-mortem practices that appear to have
prevailed in this state until very recently. In
particular, the group was concerned at the very
high rate of organ retention following post-mortem
in Irish hospitals. This concern was compounded
by the fact that in virtually all cases, organs
were removed, retained and disposed of in the
absence of explicit informed consent. Some of
these organs were preserved and retained for years
in laboratories within hospitals. Parents or other
next-of-kin had never been aware that some hospitals
had retained/preserved some or all of the organs
of their deceased relative.
However it was the callous
disregard with which most organs were disposed
that was the source of deepest pain and abhorrence
among most families. The retained organs were
incinerated along with hospital waste -a manner
of disposal that displayed an insensitive disregard
to the human origin of these organs. This pain
was intensified by a revelation in February 2000
that a leading Dublin hospital had transferred
pituitary glands to a large pharmaceutical company
in return for a monetary donation, albeit a nominal
one. The transfer of pituitary glands was undertaken
without the knowledge or consent of next-of-kin.
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